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Title: Australien: Ärzte rätseln über Augenkrankheit
Post by: ama on September 29, 2008, 09:17:50 AM

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derStandard.at | Wissenschaft | Mensch

28.09.2008 17:49

Ärzte rätseln über bizarre Augenkrankheit einer Australierin
Melbourne - Die 21-jährige Australierin Natalie Adler ist im Rhythmus
einer ebenso rätselhaften wie bizarren Krankheit gefangen: An drei von
sechs Tagen kann sie fast nichts sehen, weil sie ihre Augenlider nicht
öffnen kann, wie die in Melbourne erscheinende Zeitung "Herald Sun" am
Sonntag berichtete.
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mehr:
http://derstandard.at/text/?id=1220459319620

 
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Natalie Adler blind three days out of six
Article from: Sunday Herald Sun
By Evonne Barry
September 28, 2008 01:06am

Woman suffers baffling one-off condition
Eyes open for three days, then clamped shut for three
Doctors say they cannot explain the cycle

A MELBOURNE woman whose eyes clamp shut for three days at a time - then
open up for the next three - has baffled specialists.
Natalie Adler, 21, has been locked in the extraordinary routine for four
years.
Doctors believe Ms Adler may be the only person in the world with her
condition.
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mehr:
http://www.news.com.au/heraldsun/story/0,21985,24413990-5002700,00.html



Die Journalisten sind mal wieder sehr, sehr langsam. Schon mit Datum vom 16.7.2008 ist dieses PDF erschienen:

http://www.eyeandear.org.au/aboutus/publications/Winter08.pdf

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Mystery eye condition drives Natalie to give

Hospital patient Natalie Adler shared her milestone 21st birthday with
the Royal Victorian Eye and Ear Hospital when she invited birthday
guests to make a donation towards new cures and treatments for a
debilitating eye condition.

Every three days, Natalie’s eyes spasm
shut, then for three days she can
hardly see except for a small slit in
her left eye. No-one knows what the
condition is or how to treat it.

It was only days before her Year
11 exams when Natalie first started
having problems with her eyes.

She woke up one morning and her
eyes were swollen. Worried about
what might be happening, she
asked her friend’s mother who is
an ophthalmologist and she told
her to go to the Eye and Ear.

While Natalie has had ongoing
treatment including botox injections,
nothing has fixed the problem.

Natalie said one of the hardest things
she had to cope with was being so
dependent on her family for day to
day things.

"I am doing my best to stay positive
and I have a really supportive family
and great doctors."

Luck was on Natalie’s side – her
21st birthday fell on a day her eyes
were open. This was the perfect
opportunity for Natalie to bring
all her friends and family together
for a big birthday celebration.

Through the generosity of friends
and family, Natalie’s birthday raised
$1,136 which will be going towards
research into conditions like this.

"All my friends and family thought it
was a really selfless idea, but said I
should be using the money to pay for
things like doctors and aids, but this
is what I really wanted."

"When you are so young, and are hit
with something like this, you just
want to raise awareness of what you
are going through."

[Fotos]
Thanks Natalie, on behalf of the
hospital, and many happy returns!

Natalie’s dog Gemma provides much
needed comfort for her on bad days.

Ophthalmologist at the Eye and Ear
Dr Justin O’Day is working with
Natalie to treat her condition.

Blepharospasm Support group

Natalie has been receiving support
from the Blepharospasm Support
group who meet at the hospital three
times a year. For more information
about this group phone:

[Australia] (03) 9587 2326.

Winter 08Page 2
[...]

A Newsletter from The Royal Victorian Eye & Ear Hospital, Melbourne

Sight & Sound is published by

The Royal Victorian Eye & Ear Hospital
32 Gisborne Street
East Melbourne Victoria 3002

This newsletter contains general
information only and you should
seek independent medical advice
before relying on this information.
Contributing editor Lyn Moorfoot
Editor Kim Payne
Phone (03) 9929 8689
Web http://www.eyeandear.org.au
Email: info [bat] eyeandear.org.au
[...]


Thank you to donors and supporters

The Eye and Ear Hospital’s mid year
appeal is still underway, and the
Hospital thanks donors for their
generous gifts and support to date.

Donations from the mid year
appeal will go to the Hospital’s
Fundraising Fund and are allocated
by priority, such as for specialist
equipment purchases, improving
direct patient care, and supporting
important areas of clinical research.

Making a donation in celebration
or in memory is a fitting way to
honour a special occasion, or the
memory of a loved one. The
Hospital acknowledges all gifts and
sends a thank you and summary
of funds raised.

A special gift in a Will supports
the work of the Eye and Ear into
the future.

As Australia’s only specialist
hospital for eye and ear, nose and
throat health, the Eye and Ear is at
the forefront of the fight against
preventable eye and hearing
conditions. We appreciate the
support from the community.
Donations are welcome and tax
deductible.

You can make a donation by
phoning [Australia] 1800 808 137 or visit
http://www.eyeandear.org.au


The bionic eye received a lot of media
attention when the Prime Minister announced it
as one of the big ideas to come out of the
2020 summit.

Free Public Lecture
“Diabetes – a global epidemic:
do we have any solutions?”
People with diabetes have 25 times
the risk of vision loss, however with
appropriate treatment, 98% of severe
vision loss can be prevented. Associate
Professor Jonathan Shaw, Research
Director at the International Diabetes
Institute will shed light on how the
quality of life can be improved for
nearly a million Australians who live
with diabetes.
Saturday, 16 August at 9 am
Royal Victorian Eye and Ear Hospital

For more information visit
http://www.eyeandear.org.au/events
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DAS sollte man lesen!
http://www.eyeandear.org.au/aboutus/publications/Winter08.pdf
.

Title: Australien: Ärzte rätseln über Augenkrankheit
Post by: Humungus on October 01, 2008, 02:32:03 PM

Sorry, diese Geschichte klingt für mich absolut unglaubwürdig. Mir ist kein einziger dreitägiger Rhythmus bekannt (außer bei speziellen Infektionen, bsp. Malaria).

Ich halte ihr Problem für psychisch verursacht.

Eines fiel mir in der Broschüre noch auf:

Laser treatment would seal up the blood vessels and stop them from leaking any further.

Dies beschreibt den Wirkmechanismus der Laserkoagulation bei diabetischer Retinopathie vollkommen falsch! Dieser besteht in 1. der Ausschaltung von minderdurchblutetem Gewebe und damit in der Hemmung der Ausschüttung von VEGF, die zur Neubildung "wilder Gefäße" führen und 2. in einer Verbesserung der Sauerstoffversorgung in vernarbtem Gewebe.

Insofern "riecht" dieses Haus für mich.