In 2012 follows
http://web.archive.org/web/20121101234925/http://www.cancercompass.com/message-board/message/all,51223,1.htm"Wayback Machine
CancerCompass
Participate
Message Board
Cancers
Multiple Myeloma
Hope4Cancer Institute
Hope4Cancer Institute
View all Multiple Myeloma Discussions Post A New Discussion
21 Posts | Page(s): Prev 1 2 3 Next
dadofelise5 dadofelise5
RE: Hope4Cancer Institute
by dadofelise5 on Sun Aug 19, 2012 04:52 AM
Quote | Reply
On May 26, 2012 4:17 AM Sally13 wrote:
Our experience was negative. The program did nothing for my daughter. She died several months after receiving treatment. Nor did I see recoveries on the part of others to support the bloated statistics that Toni Jimenez gave in a phone interview prior to our deciding to go there. The staff are attentive while you are there, but they ignore you after you leave even if you have signed up for their home programs. I think most nurses, technicians, and office people genuinely think they are helping patients, but I think Jimenez and the other doctors know the true situation--and once you are gone, they don't want to know what has happened to you because it doesn't support their advertisements. Two weeks is too short a time to cure someone of a life-threatening illness, and patients are sent home with demanding regimes that few can follow for any period of time and often with ports for IVs that can result in serious infections requiring hospitalization. Jimenez spends most of his time promoting the program. In our experience, he spends little time with patients at the clinic. When we were there, no one had been able to find reviews of the clinic. The reviews on the web are promotional items by the clinic.
Dear Sally13,
My heart goes out to you over your loss, as well as your discouraging experience with H4CI. We are so sorry...
We are currently investigating the few options that we know about at this point. Apparently there are few choices that exist for treating children under the age of 16 who have been diagnosed with cancer, outside of the FDA-approved protocol.
Sally13, how old was your daughter, if I might ask? What was her diagnosis and condition? What was the time span from her initial diagnosis until her very untimely passing? What did you do prior to going to H4CI? What made you want to even go there in the first place? Did you have reservations going in, i.e. 2nd thoughts, while or after looking the place over, talking with the personnel there, especially Dr. Jimenez?
We were impressed with the place, even though it seems a lot of money for the time spent there at the clinic. And some of the equiptment is simple looking. Pam said that they would provide plans if we wanted, to replicate some of the equiptment, in addition to the "included" equiptment they give us to take home. They tout a 1-year after-care followup/ ongoing treatment utilising said equiptment they include in the total treatment price. IV's were not part of the initial after-care program, although we want to do everything possible, if it is available.
Our little girl has been being treated with IMRT potentiated by localized microwave hyperthermia since January in LA. Our family has been separated, except for a week here, a week there under FMLA, as I stay back home and work. My wife is our daughter's primary/ only full-time caregiver. She is our only child. This has been a tremendous strain on us all, of course. We do have strong faith and hope. And we have had visible, documentable, verifiable success(es). And what appear to be setbacks.
Without rewriting what I've already written here elsewhere in response to a post by a dad who's son has the same diagnosis as our daughter, I'll link it here, from Osteosarcoma high grade by josephhoctor on Fri Jul 20, 2012 6:21 AM
http://www.cancercompass.com/message-board/message/all,67231I hope we can dialogue, because at the very least you can be in our prayers, and you in turn can perhaps help save us a lot of money, if what you are claiming is accurate. And maybe steer us in the right direction. Thank you so much.
Also, if anyone reading this... Loula, mmsurvivor, talaamiri, laurendownie, IndiraGuevara, JulieAustin, truthseeker113, julianna, Morning Walker, mbg53, Chrystalluna, rjcrossley, jcr65566, lilise, etc who are looking into/ have looked into Mexican Clinics, and/ or SPDT... mgraf, scrubba, Kirsten_72, Shushi, etc., and/ or other "alternative" treatment protocols and methods, and would also like to chime in, I/ we would greatly appreciate it.
Quote | Reply
dadofelise5 dadofelise5
RE: Hope4Cancer Institute
by dadofelise5 on Sun Aug 19, 2012 04:57 AM
Quote | Reply
Sorry, that link doesn't work. Here is the full link to my first post to Josephhoctor regarding Osteosarcoma High Grade. Apparently, I deleted part of the address while editing my message:http://www.cancercompass.com/message-board/message/all,67231
Quote | Reply
dadofelise5 dadofelise5
RE: Hope4Cancer Institute
by dadofelise5 on Mon Aug 20, 2012 03:15 AM
Quote | Reply
On Sep 19, 2010 11:06 PM Loula wrote:
Has anyone heard of this clinic in Mexico?
Yes, we traveled there in July 2012 for a tour and consultation with Dr. Tony. It's pricey, altho we were told by their marketing manager that that is pretty much the going rate for this type of treatment. Then again we're newbies, and our insurance has been taking care of the lions share of our bills so far. This would be uncharted waters for us; fortunately we seem to have secured financing. Of course, I still wonder what else is "out there". The contact person we are working with (M.M.) claims that very few clinics exist that accept children. I know from my own research that this is the case in the USA, NAFTA, the FDA has the freedom (how ironic) to come 50 miles in across the international border and conficatorially snatch your kid to bring back to the states to begin the "treatment" they "should have gotten in the first place"... even if what you as parents have been doing has been working to not only build your child's immune system up to fight the disease naturally, but possibly even be well on the way to being cured! Like she said to me, "You may think you do, but ultimately you don't own your kid. They do." Well, I got news for "them", God owns our kid, and we, her parents are "just" her stewards while she is on this earth and still a minor!
What, loula, did you find out, and did you ever go there to H4CI.. or somewhere else? I/ we would be very interested to know.
Quote | Reply
dadofelise5 dadofelise5
RE: Hope4Cancer Institute
by dadofelise5 on Mon Aug 20, 2012 03:25 AM
Quote | Reply
On Sep 20, 2010 10:46 PM mmsurvivor wrote:
Your welcome: Congrats and let us know how it goes, those on the list are well thought of and one of my patients in the early 80's went to one and did very well......Hope for a remission for you. MMS
Dear MMS,
Wondering if you know any more anout H4CI, and just wanted to dovetail to you what I wrote to someone else here who you briefly corresponded with. Here are the links to what I wrote/ our story so far:
Reply to sally13 who had horrible experience with H4CI/ loss of daughter…
http://www.cancercompass.com/message-board/message/all,51223Reply to josephhoctor who has 8 yr old son w/ Mets OS…
http://www.cancercompass.com/message-board/message/all,67231Reply to loula, asked if anyone has heard of this clinic in Mexico?
http://www.cancercompass.com/message-board/message/all,51223Quote | Reply
dadofelise5 dadofelise5
RE: Hope4Cancer Institute
by dadofelise5 on Mon Aug 20, 2012 03:32 AM
Quote | Reply
On Oct 04, 2010 5:57 AM talaamiri wrote:
please let me know of the web site or tel number of the clinics you have found.
-San Diego clinic
-Tijuana clinic
Thank you very much.
Tala
Dear Tala,
It's been 2 years since you posted here on CancerCompass, but I wanted to ask if you ever found out more in your research, and did you ever utilise any of the services/ treatment protocols from any of these clinics, or others you found later in your research/ treatment journey?
I have provided some links below, giving you the option to click on and learn much more about our journey with our daughter, rather than clog up this space with the actual body of previously written replies...
Reply to sally13 who had horrible experience with H4CI/ loss of daughter…
http://www.cancercompass.com/message-board/message/all,51223Reply to josephhoctor who has 8 yr old son w/ OS…
http://www.cancercompass.com/message-board/message/all,67231Reply to loula, asked if anyone has heard of this clinic in Mexico?
http://www.cancercompass.com/message-board/message/all,51223Quote | Reply
dadofelise5 dadofelise5
RE: Hope4Cancer Institute
by dadofelise5 on Mon Aug 20, 2012 03:46 AM
Quote | Reply
On Jun 01, 2012 9:33 PM laurendownie wrote:
Hi sorry for the questions,what type of cancer did your daughter have?and whats her age?my daughter is 7 and has neuroblastoma and were about to go here as a last ditch attempt as she has alot of cancer in her bones. ive read some positive some negative. flights are going to cost us almost as much as the treatment!!! im so sorry to hear of the passing of your daughter. something no parent should ever endure x
Hello Lauren,
How is your dear daughter doing? I pray for good news.
I am in the process of responding one by one to each contributor here on CancerCompass regarding a specific Mexican clinic (Hope4Cancer Institute), and/ or any others offering similar treatment protocols... your response to sally13 (who I still do really hope to hear from, as we are very close to committing to going to H4CI) was only a few months ago, so still pertinent. DId you ever hear from her privately? I too concur with your thoughts, I agree, no parent should ever endure the gruesome passing of their little child... And my heart and prayers go to you as well for your own challenging situation. You said you read some positive (reviews/ comments), "some" negative, implying more than one. Not sure if one of them is sally13's review here on CC... What other(s) did you come across and could/ would you PLEASE share them with me? ASA. We are this close to committing to H4CI, and financially it will wipe us out. But it's our best hope (not "Hope") at this point. Our learning curve is a work in progress, hampered by the unavoidable fact that our family is split apart by this as I work back in the midwest while they are on the west coast since January; my wife is our daughter's caregiver, is getting burned out, and every 5 days out of 7 I have to somehow concentrate on and switch my allegiance from my daughter's life and the reunification of our family unit, back to our primary source of income which generates our insurance benefits.
Any leads, or thoughts you can find time to share with me/ us here would be a godsend. Thank you!
PS here are the links to my previous replies to pertinent postings here on CC:
Reply to sally13 who had horrible experience with H4CI/ loss of daughter…
http://www.cancercompass.com/message-board/message/all,51223Reply to josephhoctor who has 8 yr old son w/ OS…
http://www.cancercompass.com/message-board/message/all,67231Reply to loula, asked if anyone has heard of this clinic in Mexico?
http://www.cancercompass.com/message-board/message/all,51223Quote | Reply
dadofelise5 dadofelise5
RE: Hope4Cancer Institute
by dadofelise5 on Mon Aug 20, 2012 03:55 AM
Quote | Reply
On Jun 11, 2012 5:09 AM IndiraGuevara wrote:
Oh my osh, is your daughter Olivia? We have just donated to the neuroblastoma families, i am sorry it is not much, but really praying for Olivia. My daughter also has neuoblastoma, and we are looking into this cancer treatment as well. Please do keep us updatec on ow it goes.
www.mayakim.ca " target="_blank" rel="nofollow">www.mayakim.ca "" target="_blank" rel="nofollow">
http://www.mayakim.ca " target="_blank" rel="nofollow">www.mayakim.ca " target="_blank" rel="nofollow">www.mayakim.ca " target="_blank" rel="nofollow">www.mayakim.ca
Good evening Indira and family,
I have been on your website
www.mayakim.ca " target="_blank" rel="nofollow">www.mayakim.ca a few times now reading your blog entries. My thoughts and prayers go out for your daughter. I did not see any mention or information on Hope4Cancer Institute there on your site, and no one has apparently responded yet to your post here in this section of the site. What was your assessment of H4CI? DId you decide/ were you able to travel over the border and look further into it, or actually commit to one of them for treatment?
Here are three links to previous replies I have shared with others here on CC, regarding a thumbnail background sketch on our journey, and especially as it relates to our search for a place that will treat her systemically, hopefully to eradicate every last rogue cell in her body...
Reply to sally13 who had horrible experience with H4CI/ loss of daughter…
http://www.cancercompass.com/message-board/message/all,51223Reply to josephhoctor who has 8 yr old son w/ OS…
http://www.cancercompass.com/message-board/message/all,67231Reply to loula, asked if anyone has heard of this clinic in Mexico?
http://www.cancercompass.com/message-board/message/all,51223Quote | Reply
dadofelise5 dadofelise5
RE: Hope4Cancer Institute
by dadofelise5 on Mon Aug 20, 2012 03:58 AM
Quote | Reply
On Jun 27, 2012 5:34 AM JulieAustin wrote:
What clinics in San Diego are you talking about ?
Julie,
Did you ever look any further into any of the Mexican clinics? Here is a portion of our story, as told via three different replies to posts here..
Reply to sally13 who had horrible experience with H4CI/ loss of daughter…
http://www.cancercompass.com/message-board/message/all,51223Reply to josephhoctor who has 8 yr old son w/ OS…
http://www.cancercompass.com/message-board/message/all,67231Reply to loula, asked if anyone has heard of this clinic in Mexico?
http://www.cancercompass.com/message-board/message/all,51223Quote | Reply
laurendownie laurendownie
RE: Hope4Cancer Institute
by laurendownie on Mon Aug 20, 2012 09:43 AM
Quote | Reply
My dear dear darling daughter Olivia has died I am devastated to tell you.we had the most horrifying experience at the hope4cancer clinic.she died the most painful tragic death.my daugher is Olivia downie.if you google her you will find some partial information on this.i am willing to chat about this but cant find the strength right now to post it all on here.we were transferred to a private hospital where Olivia was on life support.she then returned home in a private emergency air ambulance at our expense.or rather the nations expense.the clinic never checked on Olivia' the hope 4 cancer clinic never called emailed etc etc.she died after 2days of returning home to local hosp.she had a a very very high tumour marker the clinic gave her a bx injection vaccine....which most definately worsened her condition.gave her torturous pain...then her lungs filled with fluids.we never got to hear her voice again...or see her eyes open...I emailed the clinic and called,asking for a breakdown of the ingredients in the bx protocol.my questions ignored.they took us over there got the money...finished olivia off when she could have spent the time at home and the left us to get on with it,Quote | Reply
printweaver printweaver
RE: Hope4Cancer Institute
by printweaver on Wed Aug 29, 2012 02:28 AM
Quote | Reply
My heart goes out to you and your family for the loss Olivia. I was thinking of taking my father to hope4cancer, but know now it is not a good option. God bless you...
Quote | Reply"
laurendownie on Mon Aug 20, 2012 09:43 AM:
"the clinic gave her a bx injection vaccine....which most definately worsened her condition.gave her torturous pain...then her lungs filled with fluids."laurendownie on Mon Aug 20, 2012 09:43 AM:
"I emailed the clinic and called,asking for a breakdown of the ingredients in the bx protocol.my questions ignored."This is two facts still ignored. Why?